‘As of January 2014, NHS England is sending out a leaflet entitled Better information means better care via junk mail. It is not addressed directly to you as a patient and it deliberately doesn’t include an opt-out form. The leaflet says you should “speak to your GP practice” if you want to opt out. This is misleading and could waste your time and potentially waste valuable GP appointments.
All you need do is write a letter or download a simple form (link below) instructing your doctor to opt you out, which you can fill in and post or drop into your surgery reception for their attention.
Dr Neil Bhatia, a Hampshire GP, has written a leaflet with a tear-off form that you can use for yourself, your children and anyone for whom you hold enduring power of attorney:’
‘Privacy experts have warned that commercial firms will be able to identify people when they are given access to confidential NHS patient data.
The Health and Social Care Information Centre is set to go live later this year allowing health or big pharma companies to buy patients’ medical records for the first time.
The HSCIC claims to have been set up to make research easier and to help drug insurance and health companies understand side-effects and trends on a national scale.
But companies like Bupa or Virgin that already hold data on UK patients may be able to use the new anonymous data available from the centre to precisely identify where it has come from, according to campaigners.’